None of this is personal, and yet the repeal debate is a referendum on my existence.
I was diagnosed at age 2 with cystic fibrosis, a hereditary disease affecting more than 30,000 Americans. CF causes thick mucus to build up in the lungs. The result is a short life marked by chronic infections and relentless coughing. Cystic fibrosis is extremely rare — a wicked lottery ticket. It is a horrific way to die, and it is not an easy way to live.
I'm now 34. Statistically, I have seven years left.
